Research And Data Hub

The first cross-border, equity-centered data hub for Alzheimer’s, Autism, and neurocognitive research.

Why Diverse Data Matters

Most of the world’s Alzheimer’s and Autism research is built on homogeneous data — leaving millions of families, particularly from Hispanic, Latin American, and underserved populations, invisible in diagnostics, therapies, and innovation.


At NeuroCognitiva, we’re changing that by aggregating and ethically sharing clinical, cognitive, genetic, and behavioral data from historically underrepresented populations in both the U.S. and Latin America.


Our goal: Fuel better science, faster breakthroughs, and more inclusive care.

 

What We Offer Researchers

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Global Cohort Access

Early-onset Alzheimer’s populations from Colombia (e.g., PSEN1 mutation carriers)


Underserved Autism cohorts across Latino and bilingual communities


Culturally informed cognitive and behavioral assessments

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Ethically Governed Data Infrastructure

IRB-compliant de-identification and consent protocols


HIPAA & GDPR-aligned sharing agreements


Tiered access for researchers, students, and institutions

Medical Science Laboratory with Diverse Multi-Ethnic Team of Microbiology Scientists Have Meeting on Developing Drugs, Medicine, Doing Biotechnology Research. Working on Computers, Analyzing Samples

Collaborative Research Opportunities

Data use for NIH grants, pre-clinical validation, and cross-population studies


Co-author opportunities with our advisory board and academic partners


Joint pilot design and research translation support

Types of Data Collected

Clinical Diagnosis data, treatment plans, progression logs

Cognitive Assessments Longitudinal memory, language, behavior scores

Genetic Familial markers like PSEN1, APOE4, and others

Neuroimaging MRI, PET, CT when available (U.S. and LatAm clinics)

Social Determinants Education, geography, income, language use

Cultural Variables Stigma, access delays, family structure, trust dynamics

Featured Collaborations

Universidad De Antioquia

Universidad De Antioquia

Global leaders in early-onset Alzheimer’s genetics — our founding LatAm data partner.

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US Academic and Clinical Sites

We are in discussion with multiple universities and clinics to integrate U.S.-based Hispanic Autism and Alzheimer’s datasets.

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Research Working Groups

Join our virtual working groups to co-design studies, define access protocols, and explore cross-border research initiatives.

Want to Collaborate?

If you're a:

University with relevant data to share or analyze

Clinician interested in contributing anonymized records

Pharma or biotech firm seeking diverse real-world evidence

Public health agency looking to build community-based data systems

We'd love to partner!

Open Resources (Coming Soon)

Data Access Request Portal

Research Ethics & Community Consent Guidelines

Case Studies & Data-Driven Policy Briefs

Researcher Onboarding Toolkit

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Guiding Principles

Informed Consent – All families are partners, not subjects


Representation First – We prioritize populations long excluded from science


Ethical Stewardship – Our data serves care, not exploitation


Equity in Authorship – We share credit with all collaborators

Interested in Contributing Data?

Join our mission to build the world’s most inclusive Alzheimer’s and Autism research database.