Research And Data Hub
The first cross-border, equity-centered data hub for Alzheimer’s, Autism, and neurocognitive research.
Why Diverse Data Matters
Most of the world’s Alzheimer’s and Autism research is built on homogeneous data — leaving millions of families, particularly from Hispanic, Latin American, and underserved populations, invisible in diagnostics, therapies, and innovation.
At NeuroCognitiva, we’re changing that by aggregating and ethically sharing clinical, cognitive, genetic, and behavioral data from historically underrepresented populations in both the U.S. and Latin America.
Our goal: Fuel better science, faster breakthroughs, and more inclusive care.
What We Offer Researchers
Global Cohort Access
Early-onset Alzheimer’s populations from Colombia (e.g., PSEN1 mutation carriers)
Underserved Autism cohorts across Latino and bilingual communities
Culturally informed cognitive and behavioral assessments
Ethically Governed Data Infrastructure
IRB-compliant de-identification and consent protocols
HIPAA & GDPR-aligned sharing agreements
Tiered access for researchers, students, and institutions
Collaborative Research Opportunities
Data use for NIH grants, pre-clinical validation, and cross-population studies
Co-author opportunities with our advisory board and academic partners
Joint pilot design and research translation support
Types of Data Collected
Clinical Diagnosis data, treatment plans, progression logs
Cognitive Assessments Longitudinal memory, language, behavior scores
Genetic Familial markers like PSEN1, APOE4, and others
Neuroimaging MRI, PET, CT when available (U.S. and LatAm clinics)
Social Determinants Education, geography, income, language use
Cultural Variables Stigma, access delays, family structure, trust dynamics
Featured Collaborations
Universidad De Antioquia
Global leaders in early-onset Alzheimer’s genetics — our founding LatAm data partner.
US Academic and Clinical Sites
We are in discussion with multiple universities and clinics to integrate U.S.-based Hispanic Autism and Alzheimer’s datasets.
Research Working Groups
Join our virtual working groups to co-design studies, define access protocols, and explore cross-border research initiatives.
Want to Collaborate?
If you're a: University with relevant data to share or analyze Clinician interested in contributing anonymized records Pharma or biotech firm seeking diverse real-world evidence Public health agency looking to build community-based data systems We'd love to partner!
Open Resources (Coming Soon)
Data Access Request Portal
Research Ethics & Community Consent Guidelines
Case Studies & Data-Driven Policy Briefs
Researcher Onboarding Toolkit
Guiding Principles
Informed Consent – All families are partners, not subjects
Representation First – We prioritize populations long excluded from science
Ethical Stewardship – Our data serves care, not exploitation
Equity in Authorship – We share credit with all collaborators
Interested in Contributing Data?
Join our mission to build the world’s most inclusive Alzheimer’s and Autism research database.